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On Friday, June 15th,
2001 my son, Ben, graduates with his sixth grade class from Brandon
Elementary School in Goleta, California. For my family, this will be a day
remembered long after most memories fade.
The sixth grade students will stand proudly on stage, each looking out in
the audience searching for their parents, and when the eyes of parents and
child finally meet, big smiles will appear on everyone's faces and hands
will wave.
Parents will look to whoever stands next to them and say, "That's my
Johnny," or "Doesn't my Melinda look so beautiful," and "Which child is
yours?"
Ben won't be looking for his father or me; he will just know we are there.
We won't wave, because he wouldn't be able to see if we did. But he will
know the pride we carry in our hearts and in our souls - he will feel it.
Maybe, I'll wave anyway.
As other parents yell out children's names trying to catch their attention
for the photo opportunity that will grace the pages of the family album
for decades to come, Ben's father and I won't yell out. Ben wouldn't hear
it if we did.
But, that's okay. A camera cannot capture what Ben's fellow classmates
feel about him as a valued friend and neighbor.
Maybe, I'll yell out his name anyway.
Ben's father and I will almost certainly be sitting with dozens of other
proud parents, tears collecting in their eyes, as they reflect upon all
the years that preceded this momentous day and what it took to get there.
It was probably a hard road traveled.
Some parents will be fantasizing of the rewards they shall reap from the
commitment to their children's education, imagining a future with a Nobel
Prize winning scientist, a famous surgeon, or a high-powered lawyer in the
family. Others will be thinking about the symbolism of the ceremony -
their child's biggest step so far toward independence, self-sufficiency,
and adulthood.
After all, that is what parents are supposed to prepare their children to
achieve.
My thoughts will be elsewhere.
It wasn't long ago that Ben's participation in the regular classroom of
his neighborhood school was not possible.
Thirty years ago Ben would not have had a chance to know about school
because a public education was not available. Ten years ago Ben's only
choice would have been a classroom for the "severely handicapped," far
away from his neighborhood in a room at the back of a school campus, where
his peers would never have known he existed.
Ben's graduation on Friday will be symbolic of tremendous change in how
people with disabilities are perceived and Ben has made contributions
toward this change that will likely never be rewarded, touted, or even
acknowledged the way academic excellence is.
But Ben doesn't care and neither do I. Not much anyway.
Ben's reward is that his life has helped shape the future for other
children with and without disabilities and someday all children will
become a natural part of the human experience.
I plan on living to see this day.
As we watch our children in the graduation procession, I will remember the
years that have passed since Ben's first day of kindergarten when he lined
up with his new classmates to enter their classroom for the first time.
The teacher said to each child, including Ben, "Welcome, I am so glad you
are in my class."
I will remember when a parent ran up to me on the first day of fourth
grade and said all her daughter could say to her was, "I finally get to be
in Ben's class."
I will remember the day the principal said to me, "Terry, I have been
getting letters from parents requesting their children be in the same
class as Ben. What am I going to do? I can't possibly accommodate all the
requests."
I will remember all the kids that wanted to be Ben's roommate on their
adventure to Astro Camp last year, and seeing Ernesto hold Ben's hand as
the class watched a movie in a Hollywood theatre last week.
I will remember when Isaac accidentally broke Ben's hearing aide case, and
he asked his grandfather to drive him downtown to buy a new one. Isaac
waited in the school parking lot the next morning and when Ben and I
arrived, Isaac ran up to the car, new case in hand, and said, "I know how
important this is to you, Ben."
I will remember the look on the on the faces of his classmates and
friends, when he pushes the lever on his new wheelchair and slowly rises
up to stand tall next to the friends he has learned to love and appreciate
so much.
I will remember.
I dedicate today's column to Steve Minjarez, the director of Pupil
Personnel and Special Services, Goleta Union School District. You made it
possible.
Terry Boisot is the parent of a child with disabilities, serves on the
board of directors of Alpha Resource Center of Santa Barbara and The Arc
of the United States, and is the Chair of the Board of Directors of
TheArcLink. She is concerned about all disability matters and welcomes
comments at tboisot@silcom.com
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